Saturday

March 21, 2009

It seems unreal that the last four weeks could pass so quickly. Much of it has been spent recovering and dealing with the many extreme side effects of this drug. Because this trial was phase one, the doctors couldn’t tell me any of the side effects that would accompany the drug, so it’s been very strange to tell them what’s happening and have them say “Oh, really?” or “Is that right?”

So after several bouts of intense unexplained pain, a day spent in the ER—trying to figure it out, an entire day spent at ORMC for transfusion, numerous doctor’s appointments, several days and nights eaten up by migraines (which happened to come on as a result of this treatment), and lots of questioning, why is my body doing this and that and everything in between, I’ve managed to squeeze in a little normal.

Things like teaching two days of preschool (monumental on my list of things I’ve done in the past 4 weeks!), trying to be nicer mom and wife (the pain really gets me), tackling two huge stacks of filing (the past five months of business and personal papers built up—the stacks combined were 2.5 feet high—I measured—did I mention I HATE filing?) and trying to get some (very little) writing done. We also got to see our friends Amie and Zach Houser over this last week. They lived across the street from us in Little Italy and it’s been at least five years. It was so much fun to see them and remember what good times we had and good friends we had in them! They live in Japan and we feel lucky they’d take time to see us in the short amount of time they were visiting Utah.

Ward feels grateful that I’m finally feeling a little more normal. Last night he said, “You finally seem like you.” I have looked really pale and been so tired. I feel more normal, so that’s good.

So here’s the plan. Thanks to the substantial amount of air in my study coordinator’s brain, my schedule has been dumped upside down more than once over the last 3 days. My flights have changed twice (she’s very glad I purchased trip insurance), my scans have been changed and moved more than twice and my way of speaking to her has become incredibly direct and clear. Now I will be going to Colorado on the 30th of March and staying for one night to complete all the scans and appointments.

That gives us one extra week of trying to be normal and we’re glad because our anniversary is this next weekend (13 YEARS!) and we are going to do something fun. Our kids are invited because we leave them too much for treatment, so we are going to have a fun little family trip.

9 comments:

Amie said...

Anne--It was so wonderful to see you and Ward. It wasn't like we had been apart for 5 years at all. I am amazed at your strength and your beaurtiful soul just shines through when you smile. I'm so glad you've got a date pinned down and glad you can enjoy another week. I hope those migraines stop. And the other strange side-effects, as well. It was wonderful to see you. We're praying for you and Ward and your cute girls.

Josi said...

I'm so glad you're feeling more like Anne :-) And have a great time next weekend.

Brodi Ashton said...

I'm sorry your break has been tough, but you sound like you are doing better.

Scott and Kourt said...

Congratulations on your anniversary! 13 years that is awesome. We hope that you guys have a blast. You deserve it. You all are inspiring I can't believe the amount of things you do on a daily basis it is amazing. Have a great time. Can't wait to hear what you did and to see photos.

Spencer and Whitney said...

I guess I shouldn't complain when Whitney makes me go through my 2-1/2 inch stack of papers. We are glad you are feeling better. We love you.

Sydney said...

Have a wonderful time together as a family and best of luck in Colorado next week.

Ronda Hinrichsen said...

You go, girl! You and your family are amazing! Looking forward to seeing you again.

Heidi and Maxwell said...

I loved, loved, loved your picture show. Too cute and you did such a great job with the pictures! I am excited for you and your sweet family to get away and just have fun together. Be safe and tell everyone we love them.

Love,
Heidi

Karla said...

I hope you have a wonderful little family vacation. You deserve it!