Sunday

May 31, 2009

I just want to give a snapshot of this week, so you won't be too upset that I didn't share the news I got in Colorado this week sooner.

Monday: Drive to Colorado with my parents, 8 hours 27 minutes, we thought we made great time.
Tuesday: Scans at the hospital, dinner with my friend Bill Frey (Bill has been fighting Melanoma for 14 years. He is a great inspiration to me. Dinner was the best part of the trip, but we missed you Karen).
Wednesday: Appointments with Doctors, drive home. I drove the entire way. We reached Morgan in 7 hours 20 min. Got to North Ogden about midnight. We made GREAT time!
Thursday: Went to McCady's class to take some class pictures. Went home to meet eight WONDERFUL neighbors and friends who helped me pack up the house. Packed all day and moved loads up that night.
Friday: Last day of school! HURRAY! Ward and I moved more loads up with Joyce and my brother Denis and his boys.
Saturday: about 35 men, neighbors, friends, and family came to load everything in Marsha and Greg's trailer. Drove to Eden where many new neighbors, friends and family came to help move in and unpack everything.

I feel so thankful for all the people who helped us move yesterday. The amazing people who came to help just made me realize how I am surrounded by good. Friends from the North Ogden 7th Ward (I can't hold back the tears when I say how much we will miss you!) and the Eden 1st ward, and family. Thank you! Thank you! I love you. I am so grateful for you.

Results
I've been thinking a lot about the results from my visit in Colorado. How do I sum it up??? Well my friend Emily sang me this little song and I think it applies:

Same song, second verse,
A little bit louder and a little bit worse!

I had mixed results this time. I actually had one tumor decrease in size. (YAY! It's progress) It was the one around my heart. It was 3.9 cm x 5.1 cm--it went to 2.9 cm x 5.1 cm. However the other tumors all grew considerably (Crappy huh, but what do you do?). The largest in my lung went from 3 cm to 7 cm. My liver is pretty much covered with little lesions, and one in my back went from 3 mm to 27 mm. I have others, but that's enough with the details.

I wish the chemo I'd been taking had shrunk more of the tumors, but treatment works differently on every patient. I will begin a new chemo regimen on Wednesday. It's more intense and aggressive, but Dr. Gonzales arranged for Dr. Gray to administer it here in Utah--thank goodness! They are testing my melanoma to see if it has a certain mutation that would qualify me for a promising study at UCLA. I'm not sure of all the details of this study, but its an option. I've also found two people who did different treatments with Stage IV Melanoma that I'm investigating. I'm keeping my options open.

So, I'm doing fine. Still walking and running, upping my time when I can. I'm grateful Ward pushed me to move on the 30th. I wanted to wait until our house closed, but now I can see how inspired he was. Now we'll be all moved in and I won't be moving while dealing with the side effects of this new treatment. Our house is under contract and we feel like that is a HUGE blessing. That way we'll be able to have it sold by mid-June.

I'm so grateful for my life. For Ward and my girls. I look at them and I can't believe how blessed I am. I want more than anything to be here with them. It's fun to be in Eden. This morning when we woke up MaLeah said, "It smells like camping!" She was right we had the windows open and it smelled like pine trees and fresh air (Not even a whiff of cows!). We live in the most beautiful place I've ever seen. I'll post pictures when we get Internet at the house. If you feel like smelling cows and camping, and visiting the most beautiful place ever, go ahead and come visit us. We'd love to have you.

12 comments:

Ronda Hinrichsen said...

All that fresh air can only help but clean your system. Even the cows. :-) Anne, I'm so glad to hear from you and so glad to know you're move is behind you. Thanks for the update. Hang in there.

Heidi and Max said...

I have to agree... it is GORGEOUS up there. What a neat place to be, especially now that summer has just begun for McCady.

We love you!
Heidi

Ganon said...

Jennie and I are thinking and praying for you, Ward and your beautiful girls. Sounds like the move went well, glad you are in your new place. The air must be fresher than Cleveland!

Holly said...

Cleveland air was too thick to breathe in deeply. Every summertime, I am still am grateful to have that humidity behind me. Can't wait to see you new home-- your own piece of paradise. (camping smell included!) Thanks for the update-- there are never too many details. We all love you Anne.

Tiff Moser said...

Hey sweetie!!! I know you have commented on my blog before and you obviously have a tie to Danjee. How is it that you know him, so that I can tell him about you? I read about this hard trial you are facing right now and my heart goes out to you. You are my hero already and I hardly know you. I am sure Heavenly Father is aware of you and your struggles and pain. I know he loves you. Hang in there. You will be in our prayers.

Josi said...

I can't believe how quickly you sold your house--what a blessing. I'm glad you're getting all settled and I'll keep my prayers headed your way. I'm grateful for your good doctors, friends, and neighbors. Thanks for the update.

Brodi Ashton said...

I love Eden. It's a place of peace, inspiration, and quiet reflection. Now I want to go write up there! So good to hear from you, as always.

Amie said...

Wow, you guys have been very busy. Sorry about the tumor news. . . How wonderful to move to Eden. I know well that rich cow smell and I LOVE it. When we drive into our home town, I always roll down the windows (sometimes you don't even have to roll them down) to smell "home." :) Happy settling into a new home. I'm glad you had lots of help, too.
Love you guys.

Moffitt Family said...

I'm exhausted reading all you've done recently! I'm so happy you and your beautiful family love your new place - we're going to get some good WV air next week! You're in my thoughts and prayers always - if you end up at UCLA you have a place to stay.

Love,
Cindy

Karla said...

Anne..........I love you.

I'm sad to hear your news from your trip. I'm sorry.
Happy your move went well, sure wish I could have been there to help. I'll figure out something else. I'm coming to see you at your new place. Sounds like Paradise. Thanks for the update. Tell Miaya I miss her. I still have your book. I like it! I'll bring it when I come see you.
You're in our Prayers everyday.
love always,
-Karla

Karla said...

I am so happy for you that your house sold and that the move went well. I will miss seeing you around . . . and your cute little girls. I would love to come and visit some time. :)

Marietta said...

hi Anne, thanks for having me read your blog. It is beautiful where you are at now. Sorry to read about your news from your recent trip. You are so strong and positive. I will keep praying for you and your beautiful family. I will also add your blog to my favorites so I can check in. Tell me about the hugs comment. I know I hugged you the last time I saw you and now I feel bad that I did. Thanks for your beautiful words and pictures. You continue to inspire me to be grateful for things that I have and for my life. I love you!!! Marietta