Today we met with Dr. Gonzales. They were unable to open the scans from Utah. This has been a continual problem since we started this whole process. So, we didn't get huge news today. I have to come back on Tuesday next week. I'm going to come alone and just stay with friends. I have to have tests and scans on Wednesday and Thursday then I have appointments on Friday. The tests will determine once and for all that the mass inside my subcarinal region is Melanoma and NOT Metastatic Thyroid Cancer. It would be so much more treatable if it were Thyroid Cancer. But then things are still a mess because I still have the other mass in the right lobe of my lung. It is not Thyroid Cancer--if only it was. So no treatments yet. But I signed a 16 page agreement to participate in a clinical trial. I will only be able to participate in it if I pass two elimination tests. I am eliminated from almost every other Melanoma clinical trial available because of the Thyroid Cancer. You can't have two types of cancer to participate. Silly, huh?
Saturday morning:
Through all of this it's really easy to get frustrated. Really. But it's all about perspective. This morning it's easier to see things. I wouldn't trade this trip. I would trade the smiles, giggles and sheer joy of seeing McCady and Ward having an all out snowball fight in the parking lot of the Mormon Temple yesterday (We were the only ones there at the time). I will never forget the excitement as Maiya jumped from the side of the pool into my arms. I couldn't give up sitting in the back of the van with my arm around MaLeah telling her it would be okay that she left her little junky Happy Meal toy in the restaurant. And the giddy anticipation of Ward as he talks about going to the National Stock show on our way out of Denver this morning. I hope he loves it as much as I love seeing him look forward to it.
I feel very lucky this morning to be here to see all this. So many people with my diagnosis didn't get to have these kinds of moments. I feel grateful for a Gideon Bible in the nightstand--so I didn't have to go wake up the kids to get my own scriptures this morning. I'm grateful for a loving Heavenly Father who is guiding us. He is ever caring and I am grateful for him. How blessed I am in so many many ways. Thank you for all your prayers and support. Love Anne
Hole
6 years ago
5 comments:
My heavens, can things be any more complicated? It's so frustrating that on top of everything else you have to deal with such SILLY things. I'm glad you had a good trip with the kids. Thanks for the update.
Anne,
Thanks for the note on Natalie's carepage. We are thinking of you and praying that things will look up for you. I am sorry that answers are slow and the waiting is so frustrating. I know how hard it is to be in limbo.
We love you and Ward and the girls and pray for you all. I'm glad you have a get-away with the girls. Good luck-hope things work for the clinical study.
Sending much love!
Marjean
We'll be praying that you qualify for the trial. I'm so sorry that you have to go through this. You are so strong. I love you.
Kaylauna
Anne:
Hello beautiful! You sure are a ray of sunshine. You have a talent to find the good in every situation and I love that about you. I love you so much. I wish I could physically be there for you right now. Prayers are more helpful than anything anyway :)
Keep smiling despite the things which are "no fun". I love you!!!
Heidi
(Don't tell the girls, but I plan on making more bows and sending them your way soon.)
I appreciate how you try to find the joy in life, Anne. Your perspective is amazing. I'm glad you get to enjoy the moments, too. Was the Stock Show so much fun? Sebrina went on fieldtrips there with her classes when we lived in Lakewood. I would love to see you in person, but I am so grateful that you keep this blog. I'm praying that the clinical study will be helpful for you.
Much love and many prayers your way.
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